HFUNY VISION OF THE FUTURE: HFUNY MISSION: ABOUT HFUNY: Because the (Rochester) Center functions as both an HTC (Hemophilia Treatment Center) and a patient organization (the chapter was founded first and it started the HTC in 1959), it has not been able to support people and families directly the way many chapters do (e.g., as a provider, it could not have a robust patient assistance program). HFUNY was born to fill this need and to bolster educational efforts in support of affected families across the region. The HFUNY founders envision an active, flexible organization that will engage in supportive, collaborative, transparent relationships with existing patient organizations and providers.. |
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