Privacy Policy

This Privacy Policy discloses the privacy practices for Hemophilia Foundation of Upstate New York, Inc. (“HFUNY”) (http://www.hfuny.org/). This Privacy Policy applies solely to information collected by this web site. It will notify you of the following:

1. What personally identifiable information is collected from you through the web site, how it is used and with whom it may be shared.
2. What choices are available to you regarding the use of your data.
3. The security procedures in place to protect the misuse of your information.
4. How you can correct any inaccuracies in the information.

Information Collection, Use, and Sharing

We are the sole owners of the information collected on this site. We only have access to/collect information that you voluntarily give us via email or other direct contact from you. This may include your name, address, phone number, email address, and payment information. We respect your privacy, and we will not sell or rent information that identifies you or your email address.

We will use your information to respond to you regarding the reason you contacted us. We will not share your information with any third party outside of our organization, other than as necessary to fulfill your request or as may be required to comply with the law, a judicial proceeding, court order, or other legal process.

Unless you ask us not to, we may contact you via email in the future to tell you about news we think you will find pertinent, announcements about HFUNY events, direct fundraising solicitations annually or changes to this Privacy Policy.

Your Access to and Control Over Information

You may opt out of any future email contacts from us at any time. You can do the following at any time by opting out on an electronic communication or by contacting us via the email address or phone number given on our website/as provided for below:

• See what electronic data we have about you.
• Change/correct any data we have about you.
• Have us delete any data we have about you.
• Express any concern you have about our use of your data.

Security

We take precautions to protect your information. When you submit sensitive information via the website, your information is protected both online and offline.

Wherever we collect sensitive information (such as credit card data), that information is encrypted and transmitted to us in a secure manner.

While we use encryption to protect sensitive information transmitted online, we also protect your information offline. Only employees who need the information to perform a specific job (e.g., billing or scheduling) are granted access to personally identifiable information. The computers/servers in which we store personally identifiable information are kept in a secure environment. NOTE: this website does not collect or use Protected Health Information (PHI).

Despite these safeguards, you provide your personal information to us at your own risk. You acknowledge that: (1) there are security and privacy limitations in computer systems and on the Internet which are beyond our control; (2) the security, integrity, and privacy of any and all information and data exchanged between you and us through the website, including personal information, cannot be guaranteed; and (3) any such information and data, including personal information, may be viewed or tampered with by a third party while such information or data is being used, transmitted, processed, or stored.

Links

This web site may contain links to other sites. Please be aware that we are not responsible for the content or privacy practices of such other sites. We encourage our users to be aware when they leave our site and to read the privacy statements of any other site that collects personally identifiable information.

Updates

Our Privacy Policy may change from time to time and all updates will be posted on this page.

HFUNY is committed to providing a website that is accessible and navigable to all consumers. To that end, we are working to assess and increase the accessibility and usability of our Site using available standards and guidelines to assist in our efforts. We will regularly review the Site in comparison to public guidelines using recognized accessibility evaluation tools. Ultimately, conformance with these guidelines will help make the web more user-friendly for all. While HFUNY strives to adhere to the accepted guidelines and standards for accessibility and usability, it is not always possible to do so in all areas of the Site at all times. Should you experience any difficulty in accessing areas of the Site, please do not hesitate to contact us as outlined at the end of this Privacy Policy.

Questions and How to Contact Us

If you have any questions, concerns, complaints or suggestions regarding our Privacy Policy or otherwise need to contact us, you may contact us through any of the following:

Telephone: 585-922-5700

E-Mail: eric.iglewski@rochesterregional.org

Effective Date: June 18, 2024